Total hysterectomy and multiple surgeries

A year after having a hysterectomy Anna’s symptoms returned and she had to have another surgery to remove endometriosis.  This was followed by more surgeries as the endometriosis kept returning





This is Anna’s story….


I can’t believe that there are so many of us (endometriosis women) out there. For so long I thought I was all alone. I had a complete hysterectomy at age 27. I already had 3 children. So, the fact of having it done, was so exciting especially because I believed that would end all my problems. Boy, was I mistaken? That was only the beginning.

 

A year later the agonising symptoms ware back. (I did still have my ovaries. My Dr. said they were perfect). I had a laparoscopy done, and I was full of adhesions. He cleaned me out and I was Okay. Well, for about 6 mths. Then it all started again.

 

Everyone thought it was all in my head (including my doctor). So surgery number three, I was once again full of endometriosis and cysts on my ovaries, and adhesions. I felt great. Well for about 3 months.

 

Then the symptoms came on so strong, every day it got worse and worse. I was on prescription pain medications. It was the only way to make it through the day. I have 3 young children. I have to get out of bed and take care of them. Surgery number four came in July. He took out my ovaries and lasered the endometriosis.

 

Well, needless to say the symptoms never left. Actually, it was worse after my surgery

 

I tried to talk to my doctor but he released me of his care and referred me to Pain Management. He said that there was nothing left in me for him to take out or treat. 



So, here I am scared, in agony, and now my doctor releases me. I found another ob/gyn and he tried to tell me I was having a flare up. I said he was crazy. He wanted to treat me for IBS. I had a barium enema done. Low and behold the results came back Negative. I told him!! But they never listen to us. They think it’s all in our heads.

 

I found another doctor who really seemed to care. So in Nov I had surgery number five. there was a piece of my ovary left in me, which was covered in cysts. I was full of endometriosis. Anyway, I felt great for about 3 weeks. And ever since I haven’t gone a day without symptoms. My doctor (of course) wanted to treat me for IBS. I said no way.

 

I have come off my hormones. Since estrogen feeds endometriosis I'm staying away from them. I started taking Pro-gesterone cream. It helps with the hot flashes and mood swings


But I haven’t noticed anything else. I can't eat. I feel like I could sleep 20 hours a day and still be tired. I catch every cold that goes around, my immune system is down. I take multi-vitamins, multi-minerals, vit c, d, e, b, iron, and calcium every day.

 

I quit all sweets and caffeine. I buy my meat without hormones. I eat only raw fruit and veggies. I drink only water. I sleep every night with my heating-pad. I have tremendous faith in God. I wouldn't have made it this far without him.

 

My husband is awesome. He's been my strength. He has missed so much work. Thank-you to all who have shared your life, I don’t feel alone any more. We all suffer. We have to get through this, and stop letting this ruin our lives..... 

 

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